Friday, December 26, 2008

Jake update


Jacob went to Dallas to see his doctor last week and we were told he needed to increase his MTX to four pills a week. If we do not see an improvement in the next 3-4 weeks the doctor would like us to start Jake on cyclosporine a "rescue" drug to help him with his most recent flair up. The doctor's office is currently working on with our insurance to see if we can switch Jake to Enbrel. I think this will be a great switch for Jake if we can get approval.


On a lighter note are any of you planning on going to Washington D.C. for Capitol Hill day? I have gone back and forth on this one but I know it would be wonderful experience if we went. I think if you all are going to be there with your kids we would need to make the effort to go. I think Jake can use a little friendship and understanding right about now. It has been a rough year at school. The kids have been a little brutal and he is such a sensitive boy it really gets to him.


We hope you all are enjoying this holiday time with your families and loved ones.


All our love and hope for a fabulous 2009,


The Clement Family

Wednesday, December 3, 2008

How is everyone?

I know it is a busy time of year but I wanted to check in and see how everyone is doing? We are doing great! We've had a few checkups lately. We are still on our MTX injections, weekly. It will probably be the new year before they start backing the girls off the medication. Unfortunately they still have some lesions that haven't cleared.

I hope everyone had a great Thanksgiving .... Happy Holidays to all!

Chris